RESEARCH PRIVACY NOTICE
This Privacy Notice governs the use and storage of your personal data by the University of Limerick (the University). The processing of this data is carried out in accordance with the General Data Protection Regulation (GDPR) / Data Protection Acts 1988-2018 (“Data Protection Law”) and in accordance with this Data Protection Privacy Notice. The University is the Data Controller for personal data we process about you.
The purpose of this Data Protection Privacy Notice is to explain how the University uses and processes personal data we collect and hold about you as a research participant (“you”, “your”). This notice extends to all your personal data as defined under Article 2(1) of the General Data Protection Regulation (EU) 2016/679.
1. Title and Purpose of the research project
1.1 A Rapid Resource Repository for Health Professionals (RRR-HP): An online and social media individualised support intervention for return to practice, reassigned and new to practice, Nursing and Allied Health Professionals
1.2 Potential benefits that may arise from the research project
To develop the operational systems, access and communication protocols required to support timely, effective and individualised access to required knowledge via a web-based technology enabled learning platform.
Marketing, advertising and real time dissemination: To effectively market, advertise the project aims and platforms (webpage and twitter handle) to relevant national bodies to enable wide reach to practitioners and disciplines.
Delivery of intervention: Protocols for delivery of rapid responses will be developed and include question triaging and categorisation of clinical questions into high, medium and low complexity, monitoring of platforms for new queries, development of lists of current resources, quality checks and operational reviews.
Evaluation: To evaluate the RRR to assess a) if support and information needs of allied health professionals returning to work were met; b) the contribution the intervention makes to assisting professionals to perform in the Covid-19 context and the components that worked best c )the implementation of the project compared to initial intentions and assumptions.
2. Research Ethics Committee
2.1 Ethical approval was granted by the EHS Research Ethics Committee on [insert approval date once available].
3. Identity of the Data Controller(s)
3.1 The Data Controller/Joint Controllers is: Professor Alice Coffey, University of
Limerick, Plassey, Limerick.
4. Identity and Contact Details of the Data Protection Officer of the Data Controller(s)/
4.1 You can contact the University of Limerick’s Data Protection Officer at dataprotection@ul.ie or by writing to Data Protection Officer, Room A1-073, University of Limerick, Limerick.
5. The Identity of the Principal Investigator
5.1 The Principal Investigator for this Research Project is Professor Alice Coffey.
6. Why the University Holds Your Personal Data
6.1 The University must process your personal data in order to carry out a rapid response to your query and communicate a solution to you directly.
7. Research Participant Personal Data held by the University
7.1 You provide us with your personal data to enable us to undertake the research project. Participation in this research project is voluntary and participants may withdraw without giving any reason. Should you wish to withdraw you may do so by contacting the Principal Investigator at Alice.Coffey@ul.ie.
7.2 The categories of personal data collected/recorded may include
• Name, email address, location, profession/discipline, type of user (ie deployed, new or returned to work) and work setting (e.g acute or community setting).
8. Lawful Basis for University Processing Personal Data
8.1 Data Protection Law requires that the University must have a valid lawful basis in order to process personal data.
8.2 The University will rely on your explicit consent in order to process your personal data for research purposes. Consent must be freely given, specific, informed and an unambiguous indication of your wishes by which you (by a statement or by a clear affirmative action) signify agreement to the processing of personal data relating to you. Your decision not to consent will have no adverse consequences for you.
8.3 You are free to withdraw this consent and you can do so by contacting the Principal Investigator at the following email address Alice.Coffey@ul.ie .
9. Protecting Your Personal Data
9.1 Reasonable appropriate administrative, technical, personnel procedural and physical measures are employed to safeguard Personal Data against loss, theft and unauthorised user access, uses or modifications.
9.2 All researchers of the University must adhere to the University’s Data Protection Policy when processing Personal Data on behalf of UL (available at www.ul.ie/dataprotection). Non adherence to the University’s Data Protection Policy may lead to disciplinary action. Researchers of the University shall undertake Data Protection Training before they engage in the research project.
9.3 Personal data collected for this research project will be fully anonymised within 6 weeks of collection. Truly anonymised data is not Personal Data. Once data is anonymised for the purposes of this research project, the terms of this Privacy Notice will no longer apply.
10. Sharing Your Personal Data with Third Parties
10.1 The University will not disclose your personal data to third parties.
11. Retention of your Personal Data
11.1 All Personal Data collected for this research project will be retained in accordance with the University’s Records Management and Retention Policy.
12. Your Rights
12.1 Depending on the legal basis which we rely on to process your Personal Data, you may have the right to request that we:
• provide you with information as to whether we process your data and details relating to our processing, and with a copy of your personal data;
• rectify any inaccurate data we might have about your without undue delay;
• complete any incomplete information about you;
• under certain circumstances, erase your Personal Data without undue delay;
• under certain circumstances, be restricted from processing your data;
• under certain circumstances, furnish you with the Personal Data which you provided us within a structured, commonly used and machine readable format;
12.2 Requests for any of the above should be addressed by email to the Principal Investigator at Alice.Coffey@ul.ie AND the Data Protection Officer at dataprotection@ul.ie. Your request will be processed within 30 days of receipt. Please note, however, it may not be possible to facilitate all requests, for example, where the University is required by law to collect and process certain personal data including that personal information that is required of any research participant.
12.3 It is your responsibility to let the Principal Investigator know if your contact details change.
13. Queries, Contacts, Right of Complaint
13.1 Further information on Data Protection at the University of Limerick may be viewed at www.ul.ie/dataprotection. You can contact the Data Protection Officer at dataprotection@ul.ie or by writing to Data Protection Officer, Room A1-073, University of Limerick, Limerick.
13.2 You have a right to lodge a complaint with the Office of the Data Protection Commissioner (Supervisory Authority). While we recommend that you raise any concerns or queries with us first at the following email address Alice.Coffey@ul.ie, you may contact that Office at info@dataprotection.ie or by writing to the Data Protection Commissioner, Canal House, Station Road, Portarlington, Co. Laois.
14. Review
14.1 This Privacy Notice will be reviewed and updated from time to time to take into account changes in the law and the experience gained from the Notice in practice.
RapidInfo4U is part of the Irish Government’s national coordinated research and innovation response to the COVID-19 pandemic. RapidInfo4U is funded by a Health Research Board COVID-19 Pandemic – Rapid response funding award and managed by the Health Implementation Science and Technology cluster at the University of Limerick.
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